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DeafWeb Washington's Parents Support Page


Raising Deaf or Hard of Hearing children presents unique challenges and problems beyond those of the average parent. But who do you talk to about it? What support groups are out there that will help you find the answers to your questions? What's the best way to educate your children?

Or perhaps your deaf or hard of hearing children are grown now and you'd like to share with others what you learned raising your kids. Maybe you're a member of an existing organization that would like to spread the word of what you do to provide support for parents. Or you want to start a new organization of like-minded people.

DeafWeb Washington regularly gets email from people seeking information about such support groups. This page was developed so that you could leave info about yourselves, or your organization, and/or see a list of those who would like to be contacted.

Also, consider joining the PARENTDEAF-HH and/or the EDUDEAF listservs. Each of the preceding two links describes how to join those listservs, and also provides links to more information about each of them. You'll find them to be excellent source of support via email.

As always, DeafWeb Washington is open to suggestions for improvement. If you have suggestions for this page, contact . There is no charge for posting this information, but please notify us when you wish to have your information removed from here.

Last Posting:



Thursday, December 13, 2001 8:41:06 AM
Name: Shewanna Burton
Email: treicedickerson@sprintpcs.com

I am a single mother of 2 boys, (Timothy-2 years and Torey-4 years). Last Thanksgiving we discovered Torey was deaf. The doctors can't find out why, because he has never had an ear infections, fevers that required hospitalization, there is no known history on either side, and no diseases. My husband was killed last Ausgust and his side does not associate with me to even try to tract any futher hereditary history on his side. We live in Flatonia, Texas which is a very small town. I drive my son and two other children to the nearest regional day school in Giddings, Texas. I was the only one that suspected that he lost his hearing. He was talking fine and hearing fine until I gave birth to Timothy. I just wanted to find someone other than my family to talk to. My home address P. O. Box 1076, Flatonia, TX 78941. I don't have a home computer yet, so anything you could snail mail would be greetly appreciated.


Thursday, December 13, 2001 8:52:06 AM
Name: Shewanna Burton
Email: treicedickerson@sprintpcs.com

I am a single mother of 2 boys, (Timothy-2 years and Torey-4 years). Last Thanksgiving we discovered Torey was deaf. The doctors can't find out why, because he has never had an ear infections, fevers that required hospitalization, there is no known history on either side, and no diseases. My husband was killed last Ausgust and his side does not associate with me to even try to tract any futher hereditary history on his side. Torey received a coclear inplant this August. It's been really hard for everyone. We are trying to learn sign but it's just he and I. We live in Flatonia, Texas which is a very small town. I drive my son and two other children to the nearest regional day school in Giddings, Texas. I was the only one that suspected that he lost his hearing. He was talking fine and hearing fine until I gave birth to Timothy. I just wanted to find someone other than my family to talk to. My home address P. O. Box 1076, Flatonia, TX 78941. I don't have a home computer yet, so anything you could snail mail would be greetly appreciated.


Thursday, December 13, 2001 8:53:20 AM
Name: Shewanna Burton
Email: treicedickerson@sprintpcs.com

I am a single mother of 2 boys, (Timothy-2 years and Torey-4 years). Last Thanksgiving we discovered Torey was deaf. The doctors can't find out why, because he has never had an ear infections, fevers that required hospitalization, there is no known history on either side, and no diseases. My husband was killed last Ausgust and his side does not associate with me to even try to tract any futher hereditary history on his side. Torey received a coclear inplant this August. It's been really hard for everyone. We are trying to learn sign but it's just he and I. We live in Flatonia, Texas which is a very small town. I drive my son and two other children to the nearest regional day school in Giddings, Texas. I was the only one that suspected that he lost his hearing. He was talking fine and hearing fine until I gave birth to Timothy. I just wanted to find someone other than my family to talk to. My home address P. O. Box 1076, Flatonia, TX 78941, (512) 791-5393. I don't have a home computer yet, so anything you could snail mail would be greetly appreciated.


Friday, December 14, 2001 8:08:20 AM
Name: Nina
Email: antshrty@aol.com

I am a hearing parent with a nine year old HOH daughter. her loss is progressive and is now profound. She is speech capable and is inteligable 90% of the time. She still however doesn't understand spoken language all to well. She signs and I feel I am haveing a hard time keeping up. I don't want to lose the ability to communicate with her as she progresses in her signing and unfortunatly her hearing loss.


Sunday, December 16, 2001 10:55:04 PM
Name: Anonymous
Email: MYLILROACH@AOL.COM

Hello....my 2 yr. old daughter was recently diagnosed as profoundl deaf...i'm looking for other parents who have a similar situation for networking, support etc.....if you hae any info, please e-mail me at: MYLILROACH@aol.com Thanks


Friday, January 25, 2002 6:58:47 AM
Name: Karen Pearce
Email: kazzy oz@aol.com.au

I guess this seems a little obscure. I am from Melbourne, Australia. I have a daughter who was diagnosed profoundly deaf at 10 months of age. She turns 4 in April 2002. We also have a non-hearing impaired daughter, who turns 9 in February. Our Georgia received a Cochlear Implant at 18 months of age. I guess I am interested to correspond with parents and compare progress. I am especially interested in the professional advice in comparison to here in Australia. We dearly love the new world our darling Georgia's special needs has revealed to us. What a fantastic learning curve! Would love to hear from you and compare 'notes'. Kind regards Karen


Friday, February 01, 2002 12:23:12 AM
Name: Anonymous
Email: shawkin@hotmail.com

Hello, My daughter has recently been diagnosed with mild/moderate hearing loss. Weare just going through all the testing procedures but she will require hearing aides. I'm looking for information on what I can do to facilitate speech, learning and more interaction. She loves books, t.v., playing at the park and playing in general. She just turned three. I am concerned about the cost of hearing aids and what type of aids to purchase. Our audiologist said $900 each. We will of course purchase then but would like more inf on aids and is there any help with this. Thank you,


Friday, February 01, 2002 12:15:05 PM
Name: Richard Klass
Email: Medmktresearch@aol.com

Hi, I'm an independent market researcher. A company is requesting that I interview 10 parents of kids that have recieved cochlear ear implants. The purpose of the interview is to help bring to market more kid friendly devices. Interviews will be conducted during February 2001. If you would like to participate, please drop me an e-mail at medmktresearch@aol.com. Regards, Richard Klass


Wednesday, February 06, 2002 3:20:15 PM
Name: Lori Matthews
Email: lorijohn@yahoo.com

I would like to start a group or be a part of a support group of parents of children who are hard of hearing in the Katy/West Houston area. I am thinking about home schooling my 5 year old for the first couple of years. Tyler has a bilateral, sensoryneural severe to profound hearing loss. I am totally frustrated with the schools lack of concern about deaf/hoh kids. my son is not receiving adequate speech therapy and is still not communicating at age level. He has been involved with the school district for 4 years and is still 3-4 years behind his peers. He will not be in kindergarten until next year. I just don't know what to do. I think our next step will be a child advocate lawyer. If you have been in this situation and have come through it alive, please e-mail me.


Thursday, May 02, 2002 12:52:10 PM
Name: Mandy
Email: Mandy@pulaskiplace.com

I am looking for other mothers in the NO FL area. We are moving to NO FL!! and id like to get know other moms.


Thursday, May 02, 2002 10:42:09 PM
Name: roseann
Email: roseann@nemontel.net

I live in northeastern montana and have a deaf son that is 4. There are no services out here that can deal with a deaf child. I am just looking for someone that I can talk to about different things that will arise in my sons life and what I can possibably do for him since there is nothing here? Possibably looking for some free services such as free demo games that you can download off the internet? Anything would be of great help please!!!! Thankyou!!!!


Thursday, May 09, 2002 3:34:16 PM
Name: Yolanda Berry
Email: yberry9696@aol.com

I am very interested in the development of deaf and hard of hearing children, especially their reading development. I am a graduate student at the University of Maryland Baltimore County and am currently conducting a doctoral study focusing on the way hearing parents think about their deaf or hard of hearing chldren's reading development and what they do or have done to help their children develop reading skills. In particular, I am interested in the expectations that parents have for children's development and the kinds of reading activities that parents do with their children. I am looking for parents of deaf or hard of hearing children in grades 2-4, who live in Washington, DC, Virginia, or Maryland, who would be interested in participating in such a study. The study involves a 30-45 minute interview about the parents expectations for their children's school performance. Parental participation in this study is an opportunity for me to learn from you about your child's experiences as he or she develops and to share them with other parents who are looking for answers. If you are interested in this research, please feel free to email me at yberry9696@aol.com.


Monday, May 27, 2002 2:08:19 AM
Name: kevbo
Email: kevbo@alldeaf.com

http://www.alldeaf.com


Saturday, June 01, 2002 9:05:10 PM
Name: mommy
Email: wwww.tasillo@direct.com

I have just found out that my 8 month old is profoundly deaf. I have researched all our options, and if she is a candidate we want her to have the next best thing which is the cochlear implant. I would like to talk to any parent who has been through this journey. Thank you


Sunday, June 23, 2002 11:08:13 AM
Name: Chryste
Email: mschryste@yahoo.com

I am a single parent of a nearly 4-yr-old HOH girl. She has been in a mainstream preschool previously, but doesn't attend school currently. Because we are not involved with the school district's hearing impaired program, she doesn't know any other children who wear hearing aids (but she can always spot them in a crowd at the zoo!) - I would love for her to meet some other HI kids in the Puget Sound area (we are in North King County). She communicates orally and has an articulation delay, but no vocabulary or other language delay. I sign some, and I'd like her to learn eventually, so we are open to all kinds of communication options with any new friends we make. If you are interested in meeting or know of a group we might join, please email me at mschryste@yahoo.com. Thanks!


Monday, July 01, 2002 1:44:08 PM
Name: Beverly Jones
Email: phnx1996@yahoo.com

I am doing a reaseach paper on "How it Feels to be Deaf" from a deaf child or adult point of view. I would appreciate corresponding with anyone that would be willing to help me with personal info or knows where I can find research data. I have been studying ASL, preparing to be an interpreter. Your assistance is appreciated. Beverly Jones


Sunday, July 07, 2002 10:04:18 PM
Name: Anonymous
Email: margieclark@hotmail.com

I'm a mom of three kids. My ten year old daughter is hearing impaired only being diagnosed almost 2 years ago. For about a year she wore her hearing aids no problem but lately, like lots of young girls she cares alot about her appearance and wants to be "normal" she says. I've asked her if she'd like to meet other children like her or have penpals and she expressed an interest. I live in Central Florida are there any support groups? I've looked online for penpals for her but can't seem to locate any. Any suggestions? Also her audiologist has said she will not be able to wear in the ear aids until she's older. She wants to hide the shells from other kids but likes putting her hair behind her hears. Any suggestions?

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